Monday, 20 August 2012

An unexpected drama at the Neuro physio appointment

Since the Olympics ended things have gone downhill. I'm really glad things didn't go wrong until after the games, I'd have been really upset to have missed any of the action.

As I have talked about in my previous blogs, I walk with crutches as I have hip and back problems. I suffer from chronic pain in both but last week my back pain became much worse. It seemed to gradually increase over about 3 days. I was up all night walking around and was really fidgety as I was trying to get it to a level where the pain was manageable. I had neuro-physio coming up on the Tuesday and that day couldn't come quick enough in my mind because my physio has a knack of reducing my pain by using pressure points to release muscle spasm. Unfortunately when I arrived I was in absolute agony and no matter what she tried it just didn't seem to help at all. In fact, I think it made it worse. I could feel my eyes watering and at one point I was silently crying because I really didn't want her to see me being such an idiot about it all. When she finally finished, she asked me to sit up, which didn't come easily. Unfortunately as I sat up, I projectile vomited everywhere. Thankfully she managed to move out of the way just in time and spared herself. After that I just sat there swaying with my eyes closed feeling really faint. I must have looked like a right numpty!! I told her I needed to lay down as I felt so bad. She called the doctor over from the other wing to take a look and they checked everything. I had really low blood pressure and my oxygen levels weren't great. I think the stress of the pain was causing all this. Any who at some point during all this I did actually pass out, and woke up to find an ambulance crew stood next to me. I really didn't want to go in  but they weren't giving me any option, and with that much pain it didn't look like I had a choice, it wasn't like I could walk out of there. They took me to one of the local hospitals.

I was seen really quickly at the hospital and given some painkillers to try and ease the pain before they examined me. I never understand why they always try and give paracetamol  (the weakest painkiller in a pharmacy), to a patient in severe pain!?! As was expected, paracetamol did sweet F A, so they gave me some oramorph aswell. This didn't help either, as I use this at home intermittently for the pain and I have a certain tolerance to the low doses which means I don't really get a lot of relief from it. Eventually he offered me some IV morphine but as  good as this is as a painkiller, I knew he would never get an IV in me. I always go through the same battle with them time and time again. But I did have to eat my words when he got one in first time, albeit in my little finger! I couldn't knock the fella, he did a good job there. Perhaps my veins have had a chance to heal during the period I've been well.

The doctors at the hospital were concerned about a fracture of one of my thoracic vertebrae. Mainly because I have some degree of weakening in the bones due to steroid dependency for the last 15 years (for my lungs). I had a thoracic x ray and it was clear of a fracture but the x ray managed to incorporate the first 3 lumbar vertebrae as well and the doctor told me he could see that there was literally no space between them, they were sitting one on top of the other. As you can imagine bone rubbing on bone can be incredibly painful. I didn't want to stay in the hospital as I had an appointment with my own doctor/GP that evening and my physiotherapist had had a long discussion with her about putting me on a new medication called Gabapentin which is a drug that directly targets nerve pain. This seemed like a good option as the analgesics I've been on until now have a wide variety of uses and so don't necessarily act on the areas where I need them to. The doctor wanted me to stay as the analgesics weren't totally relieving my pain, but I figured that I'd only be stuck in there for days on end, being given loads of opiates, only to leave for home with no better idea of what was going on than when I came in. As it was, by the time we left I was too drained and in pain to get to the GP anyway. So Sean called them and explained the situation and asked if we could pick up the aforementioned new drug prescription so that I would be able to have some relief that night. They agreed but we needed to wait to hear back from the doc that night as he wanted to talk to me. But,  low and behold..... he never called back so I was left with NO pain relief that night. I was so angry and so upset. I was in agony and this just wasn't fair.  Thankfully the next day I was able to see my own doctor who gave me a script for the garbapentin and also played around with the dosages of my other medications, adding in tramadol as well. This has really helped over the past few days and I have finally managed to get some sleep.

The physio visited my house a couple of days later to see how I was doing. I was using my oxygen a lot as the pain killers were affecting my breathing. But without them I would have been climbing the walls so it was a necessary evil really. She was a bit concerned to see me laid up in the bed, still in pain and quite knocked off by the medication. She decided not to do any physio work that day as I was still in a fragile state and she didn't want to risk aggravating the injury. She consulted with the GP and together they decided they want me to have an urgent MRI on my entire spine and have referred me to see a neuro surgeon at a clinic in Dorking. They think my symptoms match with a slipped disc which may or may not need surgery (if that's what it is found to be). This has worried me as it seems pretty serious stuff but I am glad that they have been proactive in trying to find a cause for this as throwing drugs at it and treating it conservatively (as has been a habit in the past) is really not a solution.

I'd really like to start a family at some stage and so having long term issues with my spine and hips is a big worry for me. I am worried the pressure on my spine and hips as the baby grows will be majorly problematic for me and the  baby. I don't want the pregnancy to be one where I am laid up for 6 months of it in pain. That wouldn't be good for the baby. I asked the physio about this today. I know its not a pressing issue for right now but it was just something that was nagging me and I wanted to ask her about it so as I knew what to expect in the future. She really put my mind at ease as she said both her and her sister have had this injury and they were both able to bare 3 children each. She said that they actually found their back problems improved during pregnancy (who'd have though that!?!) as the muscles around the back relaxed to accommodate the babies growth. Apparently it's a common occurrence. So thats one less thing to worry about anyway. I'm waiting to hear when my appointment for the MRI and Neuro surgeon is. I'll no doubt blog about it more when I have them - should be happening in the next two weeks. 

Wednesday, 8 August 2012

Living the Olympic Dream - One crossed off the Bucket List

Hi Folks

This week I am gloriously happy. I don't think in my entire life I have ever been able to say I have been 'gloriously happy'. There is usually something niggling at me. The reason for my perky mood is that I got to attend the Olympics on Monday 6th August. And not just any Olympic event, I actually got tickets for the stadium so I was in with that huge crowd. I'm sure many of you are probably sick of hearing me bleat on about it, not least if you follow me on Twitter or are a friend on Facebook. But it has been a dream of mine to go to an The Greatest Show on Earth since I first understood what it was all about around aged 12. I never actually expected it to happen. So when I got my tickets offered to me in the ballot I was speechless. I remember just weeping like a complete nutter. I'm remembering it here as I type and its making me well up now as well. I know it must seem strange to some folk that I am such a die hard fan of the Olympics. I can't put my finger on what made me start loving it so much, all I know is 'I do!'. I will watch any event and when I originally went into the ballot, I ticked every single box for every single sport for both Olympic and Paralympic sports. I wanted to see it THAT badly that I didn't care what sport I got as long as I got to go.

The excitement on the build up to it over the last year has increased exponentially the closer it has come to my big day. My brother Ben is as nuts on the event as I am and so I was really excited when he was planning to come back from Cambodia just for the games. Unfortunately, due to the ridiculously high prices that flights cost it was unachievable. I had four tickets so I invited my uncle to take my brothers place. We are a bit sport fanatical as a family. That is to say, we love watching it haha, not actually partaking. 

The day started really early, 5:15am - this makes for a very tired Gemma. But spirits were high and my boyfriend Sean was kind enough to drive us up to Stratford for the main event. The park is absolutely huge. The TV set doesn't really do it justice. There is so much to see!! I took the wheelchair for the day, I never would have managed even to get to the Olympic entrance gate without it. Everywhere is a lonnnnnng walk. I'm really glad I made the decision to do so or I would have missed a lot of the magic.
Outside the Olympic Park


Ready to go into the Stadium :)

When we got settled in our seats there was enough time to soak up the enormity of the stadium from the inside. Everyone on the opposite side in the tiers just looked like dots. On our day (Day 9) the stadium was full to capacity - 80,000 people. Even though it was the qualifying heats, it felt like a medal event. The atmosphere was absolutely electric. Whenever anyone ran past on the track or anyone threw a shot put/discus on the field, the crowd just erupted, no matter what country the athlete was from. We were lucky enough to see the 1500m qualification round for the women, 800m qualification for the men, the Women's Shot Put, Men's Discus and 200m Hurdles for the Women. So much to see, I just didn't know where to look!!

Hannah England in the 1500M Qualification - she's wearing the knee high white socks


We all came in our Olympic T shirts, waving flags all the way  and with a lot of Olympic fever!! Was great to see so many people from so many nations doing the same. I even painted my nails with Union Jacks. A day I will remember for the rest of my life, so lucky to have shared it with my loved ones too. I have some great photos and I cant wait to get some of them printed. Now the heat is on to get some Paralympic Tickets on the official website. I would love to see some Wheelchair Basketball and Cycling, though as always, any sport will do for us :)