Crazy week. Long story involved which I'm not in the right mind set to go through start to finish. But main point I should probably mention is that I had my Brompton consultation today. And surprise surprise - no Hickman, no port - no line of any kind will be entering my sub-clavian any time soon. Apparently the risk of sepsis is too high and in emergencies the staff in A and. E wouldn't know how to access it. I disagree. Clearly I don't have 15 years of medical school to back up my opinion but I do have 27 years of living in this body, with these lungs. Not to mention a fractured shin to show for the last effort that was made to gain access when I was on deaths door and there were no veins to be stabbed. perhaps in my own stupid little way I think that it more than qualifies me to disagree?!? So with that little bombshell I am truly vexed. I can't say I didn't expect it. I knew he would say no, was just hoping for a miracle I guess.
Was also told because I'm not a CF patient I still have to buy my own (£300+) nebuliser machine. That basically says 'If you're not CF then your need isn't as great' - that is despite the fact that I have more admissions than the average CF patient?! I am not saying I am more deserving - quite the contrary. I am saying we all deserve to be treated the same and to have access to the same treatment and funding regardless of the chronic lung disease we have.
To add to my day of just general pissed-off-ness (<made up word> before you grammar geeks jump on the 'correct term train') I had to stare at that god awful cheap, shitty, donated 'art' they have on display there. In fifteen years that excuse for 'art' has not changed. It doesn't calm me when I've waited over two hours to be seen as intended but makes me even more fractious. One day I am going to lose my nut in there and break it over my knee and then burn it in some kind of pagan ceremony. Brompton really? - come-on!!!
